🗓️ Tuesday, February 24 at 9:30am 📍 Big Night Live, Boston | Virtual options also available Through discussions and stories, Rare Disease Summit will spotlight innovation across drug development, diagnostics, funding, and policy – while centering the voices of patients and caregivers driving change alongside industry and research leaders. Speakers include: ✅ Dr. Wendy Chung, Chief of Pediatrics, Boston Children's Hospital ✅ Kristen DeAndrade, Founder and Executive Director, Little Legs Big Hea

Stars bravely sharing rare disease stories in 2025! #CelebHealth #OliviaNewtonJohn #SelenaGomez #LadyGaga #Awareness2025 | Star Moment

I wanted to make a video talking to you guys about what life is like when you are living with a rare disease! I hope this Gives you guys courage to share your stories and live fearlessly!

On Rare Disease Day, discover Zuzia's story. Get inspired by her positivity and learn how the EU is working to improve awareness, diagnosis and treatment of rare diseases. #ICountonEurope | European Parliament